Havasupai Tribe of the Havasupai Reservation v. Arizona Board of Regents

204 P.3d 1063, 220 Ariz. 214, 544 Ariz. Adv. Rep. 10, 2008 Ariz. App. LEXIS 180
CourtCourt of Appeals of Arizona
DecidedNovember 28, 2008
Docket1 CA-CV 07-0454, 1 CA-CV 07-0801
StatusPublished
Cited by16 cases

This text of 204 P.3d 1063 (Havasupai Tribe of the Havasupai Reservation v. Arizona Board of Regents) is published on Counsel Stack Legal Research, covering Court of Appeals of Arizona primary law. Counsel Stack provides free access to over 12 million legal documents including statutes, case law, regulations, and constitutions.

Bluebook
Havasupai Tribe of the Havasupai Reservation v. Arizona Board of Regents, 204 P.3d 1063, 220 Ariz. 214, 544 Ariz. Adv. Rep. 10, 2008 Ariz. App. LEXIS 180 (Ark. Ct. App. 2008).

Opinions

OPINION

JOHNSEN, Judge.

¶ 1 Plaintiffs in these consolidated cases1 brought claims against the Aizona Board of Regents (“ABOR”) and others arising out of the alleged misuse of blood samples taken from members of the Havasupai Tribe in the early 1990s. In each case, the superior court entered summary judgment against the plaintiffs because it concluded they failed to comply with A-izona’s notice-of-claim statute, Aizona Revised Statutes (“A.R.S.”) section 12-821.01 (2003). Asked to apply the statute’s requirement that a claimant provide “facts supporting” the stated settlement demand, we reverse the judgments for the reasons explained below.

FACTUAL AND PROCEDURAL HISTORY

A. The Havasupai Project.

¶ 2 Members of the Havasupai Tribe (“Tribe”) live in Supai Village in the bottom of the Grand Canyon.2 An A-izona State University (“ASU”) anthropology professor named John Martin began studying the Tribe in 1963. Over the next few decades, Martin developed a strong relationship with the Tribe, working with its members on education issues, community action and development programs, and social and environmental studies. In 1989, a member of the Tribe asked Martin to look into a perceived “epidemic” of diabetes among tribal members. Martin suspected tribal members’ diabetes was related to genetics and diet. He approached ASU genetics professor Therese Markow, who agreed to work with Martin on what Martin described as a “diabetes-centered project.” Athough Markow expressed a desire to broaden the research to include schizophrenia, one of her areas of academic interest, Martin told her that the Havasupai likely would not be interested in a study [218]*218exploring other issues, but he did not foreclose the possibility. Nevertheless, almost immediately, Markow prepared an (ultimately successful) grant application to study schizophrenia among tribal members.

¶ 3 The ASU researchers created a script for presenting the blood-draw proposal to the Havasupai and also prepared informed-consent documents. Between 1990 and 1992, blood samples were taken from more than 200 Havasupai. In exchange for the Tribe’s participation in the project, ASU allowed 15 tribal members to attend some summer courses free of charge. The blood draws continued through 1992, but researchers soon concluded diabetes was growing too quickly among tribal members to be related to genetics. Markow reported in a paper published in November 1991 that there was too little variation among tribe members’ genetics to conclude the incidence of the disease among them was genetics-related.

¶4 Although the project ended for the purposes allegedly consented to by the Hava-supai, researchers at ASU and elsewhere, including the University of Arizona, continued to perform research and publish articles based on data from tribal members’ blood samples. Among the publications were at least four doctoral dissertations and various academic papers, some of which concerned evolutionary genetics, rather than medical genetics. Some of the paper’s generated from the blood samples dealt with schizophrenia, inbreeding and theories about ancient human population migrations from Asia to North America. The latter body of work is contrary to the Havasupai belief that, as a people, they originated in the Grand Canyon.

B. Questions of Informed Consent Are Raised.

¶ 5 Martin, who had thought the diabetes project had ended after early studies failed to identify a genetic link to the disease among tribal members, learned in 2002 that non-diabetes genetic research had continued on the Havasupai samples. After he was told in 2003 that an ASU graduate student was nearing completion of a dissertation based on additional Havasupai genetics research, Martin contacted several ASU officials, including a member of the ASU General Counsel’s Office, to complain that tribal members’ blood samples were being used without consent. In March 2003, a tribal member named Carletta Tilousi attended the dissertation defense. Tilousi asked the graduate student about the procedures used to obtain the blood donors’ permission for his research, but received a response that was equivocal at best.

¶ 6 A few days later, Martin disclosed to the Havasupai Tribal Council that ASU may have “mishandled” blood samples taken as part of the diabetes research project. The Tribe asked ASU for further information regarding the use of the blood samples, and on April 9, 2003, ASU told the Tribe it would undertake a prompt and thorough investigation. In the absence of further information from ASU, however, on May 9, 2003, the Tribe approved a “banishment order” that stated in relevant part:

The Havasupai Tribe has recently been informed by reliable sources that Havasu-pai blood collected by A.S.U. has been distributed to others for research, and that research may have been conducted on Ha-vasupai blood, by [ ASU] and by others, for purposes unrelated to diabetes or any other medical disorder, all in violation of the consent given by Havasupai members.
[ASU], its Professors and employees are, from this date forward banished from the Havasupai Reservation.

¶ 7 Three days after it issued the banishment order, the Tribe informed ASU that it intended to hold a press conference to publicize the matter’. ASU asked the Tribe not to go forward with the press conference and offered to hire “an external authority” jointly selected with the tribal council to investigate what happened with respect to the blood samples and the subsequent research. The Tribe accepted the offer and with ASU signed a Joint Confidentiality and Cooperative Investigation Agreement, the expressed purpose of which was to discover “the circumstances surrounding the collection of blood samples and other research data from members of the Havasupai Tribe and any [219]*219and all subsequent uses of the samples or them derivatives and other research data for research or other purposes.”

C. The Hart Report and the Settlement Meetings.

¶ 8 ABOR retained Phoenix attorney Stephen Hart to perform the promised independent investigation. Hart reported to the Tribe and various ASU and ABOR representatives on the status of his investigation during a meeting on September 5, 2003. On October 24, 2003, members of the Tribe and its counsel met with counsel for ABOR and other ABOR representatives to discuss settling the Tribe’s claims relating to the project. No settlement was reached at that time, and on December 23, 2003, Hart issued a final report describing his investigation and listing his findings. The Hart Report was 152 pages long, not counting 319 attached exhibits that together came to thousands of pages. A week later, at the request of ASU general counsel Paul Ward, counsel for both sides met again to discuss resolving the case, but no settlement was reached.

D. The Tribe’s Notices of Claim.

¶ 9 Plaintiff in the first of these two consolidated cases is the Havasupai Tribe, which filed three separate notiee-of-claim letters, dated September 8, 2003, March 5, 2004 and March 31, 2004, respectively.

¶ 10 The Tribe’s first notice of claim was dated three days after Hart met with the Tribe and others to initially report on the status of his investigation. The September 8 letter was addressed to Markow, Attorney General Terry Goddard and ASU President Michael Crow.

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Havasupai Tribe of the Havasupai Reservation v. Arizona Board of Regents
204 P.3d 1063 (Court of Appeals of Arizona, 2008)

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204 P.3d 1063, 220 Ariz. 214, 544 Ariz. Adv. Rep. 10, 2008 Ariz. App. LEXIS 180, Counsel Stack Legal Research, https://law.counselstack.com/opinion/havasupai-tribe-of-the-havasupai-reservation-v-arizona-board-of-regents-arizctapp-2008.