Rhode Island § 23-87.1-3 § 23-87.1-3. Membership of council.

Rhode Island Statutes

§ 23-87.1-3 — § 23-87.1-3. Membership of council.

Rhode Island § 23-87.1-3

Title 23Health and Safety

Ch. 23-87.1Rare Disease Advisory Council

This text of Rhode Island § 23-87.1-3 (§ 23-87.1-3. Membership of council.) is published on Counsel Stack Legal Research, covering Rhode Island primary law. Counsel Stack provides free access to over 12 million legal documents including statutes, case law, regulations, and constitutions.

Bluebook

R.I. Gen. Laws § 23-87.1-3 (2026).

Text

§ 23-87.1-3. Membership of council.
(a) All members of the council shall be full-time residents of Rhode Island and membership
            shall include a diverse set of stakeholders.
         
(b) The governor shall appoint all members and shall designate a chair of the council
            within thirty (30) days of enactment. The chair shall not hold any position within
            the government of Rhode Island and shall serve for a term of three (3) years.
         
(c) The governor shall appoint the following members:
         
(1) One representative from academic research institutions in the st

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§ 23-87.1-3. Membership of council.

(a) All members of the council shall be full-time residents of Rhode Island and membership shall include a diverse set of stakeholders.

(b) The governor shall appoint all members and shall designate a chair of the council within thirty (30) days of enactment. The chair shall not hold any position within the government of Rhode Island and shall serve for a term of three (3) years.

(c) The governor shall appoint the following members:

(1) One representative from academic research institutions in the state that receives any grant funding for rare disease research;

(2) One representative from the Rhode Island department of health's office of minority health;

(3) One representative from the Rhode Island Medicaid agency;

(4) One representative from the Rhode Island department of business regulation insurance division;

(5) One registered nurse or advanced practice registered nurse licensed and practicing in Rhode Island with experience treating rare diseases;

(6) One physician practicing in Rhode Island with experience treating rare diseases;

(7) One hospital administrator, or designee, from a hospital in Rhode Island that provides care to persons diagnosed with a rare disease;

(8) At least two (2) patients who have a rare disease;

(9) At least one caregiver of a person with a rare disease;

(10) One representative of a rare disease patient organization that operates in Rhode Island;

(11) A pharmacist with experience dispensing drugs used to treat rare diseases;

(12) A representative of the biopharma industry;

(13) A representative of a health plan company; and

(14) A member of the scientific community who is engaged in rare disease research, including, but not limited to, a medical researcher with experience conducting research on rare diseases.