Santos v. United Network for Organ Sharing

CourtDistrict Court, D. Massachusetts
DecidedSeptember 15, 2025
Docket1:24-cv-11692
StatusUnknown

This text of Santos v. United Network for Organ Sharing (Santos v. United Network for Organ Sharing) is published on Counsel Stack Legal Research, covering District Court, D. Massachusetts primary law. Counsel Stack provides free access to over 12 million legal documents including statutes, case law, regulations, and constitutions.

Bluebook
Santos v. United Network for Organ Sharing, (D. Mass. 2025).

Opinion

UNITED STATES DISTRICT COURT DISTRICT OF MASSACHUSETTS

DEON SANTOS, * * Plaintiff, * * v. * * UNITED NETWORK FOR ORGAN * Civil Action No. 1:24-cv-11692-IT SHARING, TUFTS MEDICAL CENTER, * and MASSACHUSETTS GENERAL * BRIGHAM INCORPORATED, * * Defendants. * *

MEMORANDUM AND ORDER

September 15, 2025 Pending before the court are Defendant Massachusetts General Brigham Incorporated’s (“Massachusetts General Brigham”) Motion to Dismiss [Doc. No. 30] and Defendant Tufts Medical Center’s (“Tufts”) Motion to Dismiss [Doc. No. 24], which seek dismissal of Plaintiff Deon Santos’s claims under Title VI of the Civil Rights Act and Massachusetts General Laws c. 272, § 98, based on alleged racial discrimination in the administration of the national kidney transplant waiting list. For the reasons set forth below, Tufts’s Motion to Dismiss [Doc. No. 24] is DENIED. Massachusetts General Brigham’s Motion to Dismiss [Doc. No. 30] is GRANTED as to Santos’s request for injunctive relief preventing Defendants from engaging in discrimination via application of a race-based eGFR adjustment, and is otherwise DENIED. I. Factual Background as Alleged in Plaintiff’s Complaint A. The National Kidney Transplant Waitlist The court incorporates the factual background set forth in the Memorandum and Order [Doc. No. 46] addressing Defendant United Network for Organ Sharing’s (“UNOS”) Motion to Dismiss [Doc. No. 11]. To summarize, in 1984, Congress passed the National Organ Transplant Act, creating the Organ Procurement and Transplantation Network (“OPTN”), which was tasked with maintaining a national registry for organ matching. Compl. ¶ 32 [Doc. No. 1]; see also 42 U.S.C. § 274(a)–(b). UNOS operates the OPTN and manages a national kidney transplant

waiting list. Compl. ¶¶ 32–33 [Doc. No. 1]. UNOS does not allow kidney disease patients to apply directly for inclusion on the kidney waitlist. Id. ¶ 34. To be placed on the national kidney transplant waitlist, patients must first visit one of over 200 transplant hospitals and receive a referral from their physician. Id. ¶ 35. The kidney waitlist is maintained using UNOS software called UNet. Id. ¶ 37. A referring transplant hospital adds a new patient to the waitlist by entering the patient’s name and relevant medical information, including estimated glomerular filtration rate (“eGFR”) scores, into the UNet software. Id. The UNet software includes an algorithm that uses wait time as the primary factor in ranking patients for donor kidneys. Id. ¶ 46. “Wait time points” are a significant factor in determining a candidate’s ranking in UNet’s match runs. Id. ¶ 39. For decades, a race-based

coefficient was applied to eGFR scores for Black patients seeking kidney transplants, overstating their kidney function by 16–18%. Id. ¶ 43. The race-based coefficient led to many Black kidney disease patients never qualifying for wait time based on eGFR score, and instead having their addition to the waitlist delayed until the start of dialysis, which is recommended when kidney function falls below 15 ml/min. Id. ¶ 45. On January 5, 2023, UNOS announced a new policy requiring donor hospitals to notify patients that Black Americans will be considered for wait time adjustments where the race-based coefficient delayed their accrual of wait time, to investigate which patients are eligible for a wait time adjustment, to request any adjustments with UNOS by January 3, 2024, and to notify patients of their status. Id. ¶ 59. B. Defendants Massachusetts General Brigham and Tufts Massachusetts General Brigham and Tufts are kidney transplant hospitals that refer patients to UNOS’s kidney waitlist. Id. ¶ 35. Hospitals like Massachusetts General Brigham and

Tufts must agree to be bound by UNOS’s published policies and procedures to act as transplant hospitals. Id. ¶ 36. When a new patient is referred to the waitlist, the referring transplant hospital, such as Massachusetts General Brigham and Tufts, enters the patient’s name and relevant medical information, including eGFR scores, into UNet. Id. ¶ 37. Massachusetts General Brigham and Tufts receive financial assistance from the federal government and its programs, which funds both patient care and related operations. Id. ¶ 78. C. Plaintiff Deon Santos Plaintiff Deon Santos is Black, see id. ¶ 3, and resides in Massachusetts, id. ¶ 23. Santos was diagnosed with kidney disease in 2007. Id. ¶ 5. Tufts referred him to the national kidney waitlist when he began regular chronic dialysis in 2008. Id. ¶¶ 5, 10. But for Tufts’s use of the

race-based coefficient, Santos would have been added to the waitlist earlier. Id. ¶ 11. Santos received a kidney transplant in January 2014, approximately six years after he was referred to the waitlist. Id. ¶ 11. The average wait time for a donor kidney is three to five years. Id. Because Santos’s health had deteriorated while he was waiting for the transplant, his new kidney failed within a few years. Id. ¶ 12. Massachusetts General Brigham added him to the kidney waitlist when he began regular dialysis again on or around July 2019. Id. ¶¶ 13–14. Since beginning dialysis, he has received treatment for eight hours per day, seven days per week. Id. ¶¶ 5, 14. On February 9, 2024—over one year after UNOS notified donor hospitals that they must no longer rely on the race-based coefficient—Massachusetts General Brigham notified Santos that he was eligible for a transplant wait time adjustment of 10 months. Id. ¶ 19. Santos became depressed following this notification, id. ¶ 20, and Massachusetts General Brigham marked Santos as “inactive” on the kidney waitlist because he suffers from depression,

making him indefinitely ineligible to be considered for a donor kidney, id. ¶ 21. II. Plaintiff’s Claims Against Massachusetts General Brigham and Tufts Santos asserts claims against Massachusetts General Brigham and Tufts for violation of Title VI of the Civil Rights Act of 1964 and violation of M.G.L. c. 272, § 98, which makes unlawful racial discrimination in places of public accommodation. Compl. ¶ 73–90 [Doc. No. 1]. III. Subject Matter Jurisdiction A. Standard of Review Rule 12(b)(1) is “[t]he proper vehicle for challenging a court’s subject matter jurisdiction.” Valentin v. Hosp. Bella Vista, 254 F.3d 358, 362 (1st Cir. 2001). Federal courts are courts of limited jurisdiction, so federal jurisdiction is never presumed. Viqueira v. First Bank, 140 F.3d 12, 16 (1st Cir. 1998). The party asserting jurisdiction has the burden of demonstrating the existence of federal jurisdiction. Id. At the pleading stage, the court should treat all well-

pleaded facts as true and provide the plaintiff the benefit of all reasonable inferences. Fothergill v. United States, 566 F.3d 248, 251 (1st Cir. 2009). Dismissal is appropriate only when the facts alleged in the complaint, taken as true, do not support a finding of federal subject matter jurisdiction. See id. A challenge to the court’s subject matter jurisdiction must generally be addressed before addressing the merits of a case. Acosta-Ramirez v. Banco Popular de P.R., 712 F.3d 14, 18 (1st Cir. 2013). B. Discussion 1. Standing to Pursue Claims Against Massachusetts General Brigham Massachusetts General Brigham argues that Santos lacks standing to pursue his claims against it because he “has failed to allege[] a concrete and particularized injury that is fairly traceable to an action by [Massachusetts General Brigham].” Mem.

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Santos v. United Network for Organ Sharing, Counsel Stack Legal Research, https://law.counselstack.com/opinion/santos-v-united-network-for-organ-sharing-mad-2025.