Informed Consent Action Network v. National Institutes of Health

CourtDistrict Court, District of Columbia
DecidedMarch 3, 2026
DocketCivil Action No. 2023-0926
StatusPublished

This text of Informed Consent Action Network v. National Institutes of Health (Informed Consent Action Network v. National Institutes of Health) is published on Counsel Stack Legal Research, covering District Court, District of Columbia primary law. Counsel Stack provides free access to over 12 million legal documents including statutes, case law, regulations, and constitutions.

Bluebook
Informed Consent Action Network v. National Institutes of Health, (D.D.C. 2026).

Opinion

UNITED STATES DISTRICT COURT FOR THE DISTRICT OF COLUMBIA

INFORMED CONSENT ACTION NETWORK,

Plaintiff, Civil Action No. 23 - 926 (SLS) v. Judge Sparkle L. Sooknanan

NATIONAL INSTITUTES OF HEALTH, et al.,

Defendants.

MEMORANDUM OPINION

Informed Consent Action Network (ICAN) is a nonprofit organization that seeks to raise

public awareness about vaccine safety. In February 2022, ICAN submitted two Freedom of

Information Act (FOIA) requests to the National Institutes of Health (NIH) seeking records related

to the June 2020 removal of early COVID-19 genetic sequencing data from an NIH-administered

database. NIH has since provided much of the material ICAN requested. But it has refused to

disclose identifying information for the researchers who requested the removal of the relevant

sequencing data and for NIH personnel who administer the database. NIH now moves for summary

judgment, defending those withholdings under FOIA Exemption 6. ICAN disputes the application

of that exemption and cross-moves for summary judgment. For the reasons explained below, the

Court grants summary judgment in NIH’s favor.

BACKGROUND

A. Statutory Background

FOIA “implement[s] a general philosophy of full agency disclosure.” DOJ v. Reps. Comm.

for Freedom of the Press, 489 U.S. 749, 754 (1989) (cleaned up). The statute “requires every federal agency, upon request, to make ‘promptly available to any person’ any ‘records’ so long as

the request ‘reasonably describes such records.’” Assassination Archives & Rsch. Ctr. v. CIA, 334

F.3d 55, 57 (D.C. Cir. 2003) (quoting 5 U.S.C. § 552(a)(3)). Agencies must construe FOIA

requests liberally and can only withhold or redact documents if the information requested “falls

within one of nine statutory exemptions.” People for the Ethical Treatment of Animals (PETA) v.

NIH, 745 F.3d 535, 540 (D.C. Cir. 2014) (citing 5 U.S.C. § 552(b)(1)–(9)). These exemptions

demonstrate that the public’s right to information is “not absolute and that disclosure of certain

information ‘may harm legitimate governmental or private interests.’” Martin v. DOJ, 488 F.3d

446, 453 (D.C. Cir. 2007) (quoting Summers v. DOJ, 140 F.3d 1077, 1080 (D.C. Cir. 1998)). The

agency bears the burden of establishing that an exemption applies and ordinarily “must disclose

all reasonably segregable, nonexempt portions of the requested record(s).” PETA, 745 F.3d at 540

(cleaned up).

B. Factual Background

On February 10, 2022, ICAN submitted two FOIA requests to NIH. Defs.’ Statement of

Material Facts (DSMF) ¶ 1, ECF No. 29-1; Pl.’s Statement of Material Facts (PSMF) ¶ 2,

ECF No. 31-2; see also First Request, ECF No. 1-1 at 10; Second Request, ECF No. 1-1 at 18.

Both requests referenced and attached a June 4, 2021, article in Yahoo News by Jerry Dunleavy

entitled “NIH defends deleting Covid-19 genetic data pointing to lab leak origin.” DSMF ¶ 2;

PSMF ¶ 2; see also ECF No. 1-1 at 13. The Yahoo News article discussed a recently published

scientific paper by University of Washington Professor Jesse Bloom noting that “a data set

containing SARS-CoV-2 sequences from early in the Wuhan epidemic” had been “deleted from

the NIH’s Sequence Read Archive.” ECF No. 1-1 at 14.

2 ICAN’s First Request sought (1) “[a] copy of ‘the request to remove the data in June 2020’

referenced in the [Yahoo News article]”; (2) “[a]ll communications regarding ‘the request to

remove the data in June 2020’”; and (3) “[a]ll communications regarding the removal of ‘the data

in June 2020.’” First Request at 1. The Second Request sought “[a]ll documents concerning the

NIH’s ‘review’ of data removed from the National Center for Biotechnology Information’s

(NCBI) Sequence Read Archive (SRA) data system, in light of the findings of Jesse D. Bloom,

and his publication titled Recovery of deleted deep sequencing data shed more light on the early

Wuhan SARS-CoV-2 epidemic as referenced in the [Yahoo News article].” Second Request at 1. 1

On November 28, 2022, NIH issued final responses to ICAN’s requests. PSMF ¶ 3. NIH

produced sixty-two pages in response to the First Request and seventy-five pages in response to

the Second Request. PSFM ¶ 3. NIH redacted information in both productions that it claimed was

protected from disclosure by FOIA Exemption 6. ECF No. 1-1 at 26, 29. On February 15, 2023,

ICAN appealed NIH’s responses, asserting that NIH “improperly withheld records under FOIA

Exemption 6” and had “failed to conduct an adequate search of the requested records.” PSMF ¶ 4.

On April 4, 2023, after receiving no response to its appeals, ICAN filed this lawsuit. PSMF ¶ 5.

Since this suit began, NIH has produced an additional 1,007 pages of documents and the

Parties have narrowed their disputes regarding NIH’s withholdings. DSMF ¶¶ 6–7; PSMF at 5.

Only one disagreement remains: whether NIH properly invoked Exemption 6 when it redacted

(1) identifying information for individuals who submitted data to the BioSample and SRA

databases and later requested withdrawal of that data, and (2) identifying information for NIH

1 See also Jesse D. Bloom, Recovery of Deleted Deep Sequencing Data Sheds More Light on the Early Wuhan SARS-CoV-2 Epidemic, 38 Molecular Biology & Evolution 5211 (2021), available at https://doi.org/10.1093/molbev/msab246 [https://perma.cc/G2KC-NGPB].

3 employees who work on the SRA database. DSMF ¶ 7; see also Pl.’s Mot. Summ. J. & Opp’n to

Defs.’ Mot. Summ. J. (Pl.’s Mot.) 3, 8, ECF No. 31-1. 2

C. Procedural Background

ICAN filed this lawsuit on April 4, 2023, against NIH and the United States Department

of Health and Human Services (collectively, NIH). Compl., ECF No. 1. On June 17, 2025, NIH

moved for summary judgment. Defs.’ Mot. Summ. J. (Defs.’ Mot.), ECF No. 29. On July 17, 2025,

ICAN cross-moved for summary judgment. Pl.’s Mot. Summ. J., ECF No. 31. Both motions are

now ripe for review. See Defs.’ Opp’n to Pl.’s Mot. Summ. J. & Reply Supp. Mot. Summ. J. (Defs.’

Reply), ECF No. 34; Pl.’s Reply Supp. Mot. Summ. J. & Further Opp’n to Defs.’ Mot. Summ. J.

(Pl.’s Reply), ECF No. 37; Defs.’ Notice & Suppl. Decl., ECF No. 41.

LEGAL STANDARD

Federal Rule of Civil Procedure 56 requires a court to “grant summary judgment if the

movant shows that there is no genuine dispute as to any material fact and the movant is entitled to

judgment as a matter of law.” Fed. R. Civ. P. 56(a). In a FOIA suit, an agency is entitled to

summary judgment if it establishes that “no material facts are in dispute” and that all information

subject to a request has either “been produced or is wholly exempt from the Act’s inspection

requirements.” Students Against Genocide v. Dep’t of State, 257 F.3d 828, 833 (D.C. Cir. 2001)

Free access — add to your briefcase to read the full text and ask questions with AI

Related

Summers v. Department of Justice
140 F.3d 1077 (D.C. Circuit, 1998)
Spirko v. United States Postal Service
147 F.3d 992 (D.C. Circuit, 1998)
Lepelletier v. Federal Deposit Insurance
164 F.3d 37 (D.C. Circuit, 1999)
Students Against Genocide v. Department of State
257 F.3d 828 (D.C. Circuit, 2001)
Schrecker v. United States Department of Justice
349 F.3d 657 (D.C. Circuit, 2003)
Horowitz, Michael G. v. Peace Corps
428 F.3d 271 (D.C. Circuit, 2005)
Wolf v. Central Intelligence Agency
473 F.3d 370 (D.C. Circuit, 2007)
Nathan Gardels v. Central Intelligence Agency
689 F.2d 1100 (D.C. Circuit, 1982)
John Davis v. United States Department of Justice
968 F.2d 1276 (D.C. Circuit, 1992)
Robert Charles Beck v. Department of Justice
997 F.2d 1489 (D.C. Circuit, 1993)

Cite This Page — Counsel Stack

Bluebook (online)
Informed Consent Action Network v. National Institutes of Health, Counsel Stack Legal Research, https://law.counselstack.com/opinion/informed-consent-action-network-v-national-institutes-of-health-dcd-2026.