§ 22 §1700-B — Rare Disease Advisory Council

1.
Advisory board established.
The Rare Disease Advisory Council, as established in Title 5, section 12004‑I, subsection 48‑A and referred to in this section as "the council," advises the commissioner and provides information to the public on issues regarding rare diseases. As used in this section, unless the context otherwise indicates, "rare disease" means a condition or illness that affects fewer than 200,000 persons in the United States.
2.
Membership.
The council consists of 20 members appointed by the commissioner, or the commissioner's designee, as follows:
3.
Terms; quorum; meetings.
Members serve for a term of 3 years and elect a chair from among the members. At the end of a term an outgoing member serves until a successor has been appointed. A member may serve multiple terms. The board shall meet at least once every 3 months to conduct business and to elect officers. A quorum is 11 members. The affirmative vote of a majority of the members present is necessary to decide any business brought before the board.
4.
Staff support.
The department shall provide such administrative support to the council as necessary to carry out the duties of the council.
5.
Duties of council.
The council shall:
6.
Authority to report out legislation.
The joint standing committee of the Legislature having jurisdiction over health and human services matters may report out legislation related to the report required in subsection 5, paragraph I.

Legislative History

PL 2021, c. 740, §2 (NEW). PL 2023, c. 93, §§1-7 (AMD).