(a)The state department shall do the following:
(1)Develop the following:
(A)Application criteria and standards of eligibility for groups
or organizations who apply for funds under this program.
(B)Standards for determining eligibility for individuals
requesting care and treatment for sickle cell disease under the
program established under this chapter.
(2)Make available grants to groups and organizations who meet
the eligibility standards set by the department. However:
(A)the highest priority for grants shall be accorded to
established sickle cell disease community based organizations
throughout Indiana; and
(B)priority shall also be given to ensuring the establishment of
sickle cell disease centers in underserved areas that have a
higher population of sickle cell disease patients
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(a) The state department shall do the following:
(1) Develop the following:
(A) Application criteria and standards of eligibility for groups
or organizations who apply for funds under this program.
(B) Standards for determining eligibility for individuals
requesting care and treatment for sickle cell disease under the
program established under this chapter.
(2) Make available grants to groups and organizations who meet
the eligibility standards set by the department. However:
(A) the highest priority for grants shall be accorded to
established sickle cell disease community based organizations
throughout Indiana; and
(B) priority shall also be given to ensuring the establishment of
sickle cell disease centers in underserved areas that have a
higher population of sickle cell disease patients, including the:
(i) northwest;
(ii) northeast;
(iii) south; and
(iv) southwest;
regions of Indiana.
(3) Determine the maximum amount available for each grant.
(4) Determine policies for expiration and renewal of grants.
(5) Require that all grant funds be used for the purpose of
prevention, care, and treatment of sickle cell disease or for
educational programs concerning the disease.
(6) Assist in the development and expansion of care for the
treatment of individuals with sickle cell disease, particularly for
adults, including the following types of care:
(A) Self-administered.
(B) Preventative.
(C) Home care.
(D) Other evidence based medical procedures and techniques
designed to provide maximum control over sickling episodes
typical of occurring to an individual with the disease.
(7) In order to increase the effectiveness of funds appropriated
under this chapter, provide financial assistance to individuals with
sickle cell disease for the following treatments of the disease:
(A) Chronic blood transfusions.
(B) Hydroxyurea.
(C) Folic acid.
(D) Use of other efficacious agents.
(8) Adopt necessary rules under IC 4-22-2 for the administration
of this chapter.
(b) The program described in section 2 of this chapter must provide
for the following:
(1) Increased access to health care for individuals with sickle cell
disease, with services provided either:
(A) directly through the state department; or
(B) indirectly through a contract with health care providers,
municipal health departments, or community based
organizations.
(2) Establishment of an adult sickle cell disease infusion center.
(3) Increased access to mental health resources and pain
management therapies for individuals with sickle cell disease,
with services provided either:
(A) directly through the state department; or
(B) indirectly through a contract with health care providers,
municipal health departments, or community based
organizations.
(4) Counseling to any individual, at no cost, concerning sickle cell
disease and sickle cell trait, and the characteristics, symptoms,
and treatment of the disease, with services provided either:
(A) directly through the state department; or
(B) indirectly through a contract with health care providers,
municipal health departments, or community based
organizations.
(5) The development of a sickle cell disease educational outreach
program that includes the dissemination of educational materials
to the following concerning sickle cell disease and sickle cell
trait:
(A) Medical residents.
(B) Immigrants.
(C) Schools and universities.
(D) Businesses.
(c) The counseling described in subsection (b)(4) may consist of any
of the following:
(1) Genetic counseling for an individual who tests positive for
sickle cell trait.
(2) Psychosocial counseling for an individual who tests positive
for sickle cell disease, including any of the following:
(A) Social service counseling.
(B) Psychological counseling.
(C) Psychiatric counseling.
(d) The state department may contract with an entity to implement
the sickle cell disease educational outreach program described in
subsection (b)(5).
[Pre-1993 Recodification Citation: 16-2-5-8.]