§ 16-46-17-5 — Membership

Indiana § 16-46-17-5

• Jurisdiction: Indiana
• Title 16: HEALTH
• Art. 46: STATE HEALTH GRANTS AND PROGRAMS
• Ch. 17: Rare Disease Advisory Council

Text

(a) The following individuals serve as ex
officio voting members of the council:
(1) The director of the office of Medicaid policy and planning or
the director's designee.
(2) The commissioner of the department of insurance or the
commissioner's designee.
(3) The chief operating officer of the Indiana Minority Health
Coalition or the officer's designee.
(b) Before September 1, 2023, the governor shall appoint the
following voting members:
(1) A representative from a research university in Indiana that
receives grant funding for rare disease research.
(2) A registered nurse or advanced practice registered nurse
licensed under IC 25-23 with experience treating rare diseases.
(3) A physician licensed under IC 25-22.5 with experience
treating rare diseases.
(4) A hospital administrator from a hospital licensed under IC 16-21 that provides care to individuals diagnosed with a rare
disease.
(5) Two (2) patients who have a rare disease.
(6) A caregiver of an individual with a rare disease.
(7) A representative of a rare disease patient organization that
operates in Indiana.
(8) A pharmacist with experience dispensing drugs used to treat
rare diseases.
(9) A representative of the biopharmaceutical industry.
(10) A representative of a health carrier as defined by IC 27-1-46-3.
(11) A member of the scientific community who is engaged in
rare disease research, which may include a medical researcher
with experience conducting research on rare diseases.

Legislative History

As added by P.L.129-2023, SEC.2.