§ 16-38-4-8 — Birth problems registry; reporting forms; autism spectrum disorder exemptions

(a) The state department shall establish a birth
problems registry for the purpose of recording all cases of birth
problems that occur in Indiana residents and compiling necessary and
appropriate information concerning those cases, as determined by the
state department, in order to:
(1) conduct epidemiologic and environmental studies and to apply
appropriate preventive and control measures;
(2) except for an autism spectrum disorder, inform the parents of
children with birth problems:
(A) at the time of discharge from the hospital; or
(B) if a birth problem is diagnosed during a physician or
hospital visit that occurs before the child is:
(i) except as provided in item (ii), three (3) years of age at the
time of diagnosis; or
(ii) five (5) years of age at the time of diagnosis if the
disorder is a fetal alcohol spectrum disorder;
about physicians care facilities, and appropriate community
resources, including local step ahead agencies and the infants and
toddlers with disabilities program (IC 12-12.7-2);
(3) except as provided in subsection (d), inform:
(A) the individual with problems at any age; or
(B) the individual's parent;
at the time of diagnosis, if the individual's disorder is an autism
spectrum disorder, about physicians and appropriate state and
community resources, including local step ahead agencies and the
infants and toddlers with disabilities program (IC 12-12.7-2); or
(4) inform citizens regarding programs designed to prevent or
reduce birth problems.
(b) The state department shall record in the birth problems registry:
(1) all data concerning birth problems of children that are
provided from the certificate of live birth;
(2) any additional information that may be provided by an
individual or entity described in section 7(a) of this chapter
concerning a birth problem that is:
(A) published in a list by the state department; and
(B) recognized:
(i) after the child is discharged from the hospital as a
newborn;
(ii) before the child is five (5) years of age if the child is
diagnosed with a fetal alcohol spectrum disorder;
(iii) before the child is three (3) years of age for any diagnosis
not specified in items (ii) and (iv); and
(iv) at any age if the individual is diagnosed with an autism
spectrum disorder; and
(3) information reported to the state department by the office of
the secretary under IC 12-12-9-3 concerning a child who is less
than five (5) years of age and diagnosed with a visual impairment
or blindness.
(c) The state department shall provide a physician and a local health
department with necessary forms for reporting under this chapter.
(d) Concerning an individual who is at least eight (8) years of age
and diagnosed with an autism spectrum disorder, the state department
is not required to do any of the following:
(1) Report information to the federal Centers for Disease Control
and Prevention.
(2) Confirm the individual's diagnosis.
(3) Verbally inform an individual of the information set forth in
subsection (a)(3).

Legislative History

As added by P.L.180-1993, SEC.2. Amended by P.L.93-2001, SEC.5; P.L.11-2002, SEC.1; P.L.28-2004, SEC.138; P.L.17-2004, SEC.6; P.L.2-2005, SEC.57; P.L.93-2006, SEC.14; P.L.188-2013, SEC.20; P.L.141-2014, SEC.20; P.L.130-2018, SEC.83; P.L.218-2019, SEC.4.