Melvin v. Big Data Arts LLC

CourtDistrict Court, N.D. Illinois
DecidedAugust 3, 2023
Docket1:21-cv-02194
StatusUnknown

This text of Melvin v. Big Data Arts LLC (Melvin v. Big Data Arts LLC) is published on Counsel Stack Legal Research, covering District Court, N.D. Illinois primary law. Counsel Stack provides free access to over 12 million legal documents including statutes, case law, regulations, and constitutions.

Bluebook
Melvin v. Big Data Arts LLC, (N.D. Ill. 2023).

Opinion

IN THE UNITED STATES DISTRICT COURT FOR THE NORTHERN DISTRICT OF ILLINOIS EASTERN DIVISION

David Melvin, on behalf of ) himself and all other ) similarly situated ) ) Plaintiff, ) ) v. ) No. 21 CV 2194 ) Sequencing, LLC, a California ) limited liability company ) ) Defendant. ) )

Memorandum Opinion and Order Plaintiff David Melvin alleges on behalf of himself and a class that defendant Sequencing LLC,1 which purports to offer “the world’s largest collection of DNA analysis reports,” violates the Illinois Genetic Information Privacy Act, 410 ILCS 513, et seq. (“GIPA”) by disclosing its customers’ genetic information to unknown third-party developers without first obtaining those customers’ consent. Before me is plaintiff’s motion for class certification, which seeks to certify a class defined as:

1 Counsel for Defendant represents that Big Data Arts, LLC, operated the website at issue in this lawsuit, and that Big Data Arts, LLC, later converted to Sequencing, Inc., a Delaware Corporation. See ECF 58, at n.1. Nevertheless, both parties name “Sequencing, LLC, a California limited liability Company” as defendant in all of their recent filings. In any event, the parties previously represented their counsel “are cooperating to correct the name of defendant in this action,” and that any inconsistencies in the defendant’s name do not affect the proceedings. ECF 20. All people located in the State of Illinois who, from January 28, 2020, through September 1, 2022, had their genetic test results disclosed to any third party by Sequencing.

Plaintiff also proposes a subclass of class members who purchased a DNA analysis through the Sequencing website that was actually conducted by a third-party tester, “Silverberry Genomix.” For the reasons that follow, I grant the motion. I. The Illinois legislature enacted the GIPA to enhance privacy protections prohibiting the unauthorized disclosure and use of an individual’s genetic information. See 410 ILCS 513/5 (expressing legislative intent). Plaintiff highlights three provisions of the statute that are relevant to his claim. First, Section 15 provides that “genetic testing and information derived from genetic testing is confidential and privileged and may be released only to the individual tested and to persons specifically authorized, in writing in accordance with Section 30, by that individual to receive the information[.]” 410 ILCS 513/15(a). Second, Section 30 provides that “[n]o person may disclose … the identity of any person upon whom a genetic test is performed or the results of a genetic test in a manner that permits identification of the subject of the test, except to … [a]ny person designated in a specific written legally effective authorization for release of the test results executed by the subject of the test…” 410 ILCS 513/30(a)(2). And third, Section 35 prohibits the dissemination of genetic information to an entity other than the one to which the subject provided it, stating that “[n]o person to whom the results of a test have been disclosed may disclose the test results to another person except as authorized under this Act.” 410 ILCS 513/35. Persons “aggrieved by a violation of this Act” are authorized to bring an action to recover statutory or actual damages, whichever is greater, and for injunctive relief. 410 ILCS 513/40(a). The gravamen of plaintiff’s complaint is that Sequencing offers genetic reports through an “online marketplace,” and that to produce these reports, it shares genetic information that its customers

upload to Sequencing’s website with third-party developers, allegedly without the customers’ consent. Plaintiff offers evidence garnered in discovery to establish that Sequencing’s liability under the GIPA is amenable to classwide adjudication. In particular, plaintiff relies on the testimony of Sequencing’s Chief Executive Officer and Fed. R. Civ. P. 30(b)(6) witness, Brandon Colby, to describe how Sequencing gathers genetic information from its customers and shares that information with third-party developers to produce many of the genetic reports available for purchase on Sequencing’s website. According to Mr. Colby, after a user creates an account with

Sequencing, he or she can either purchase a DNA test kit directly from Sequencing and return the results of the test or upload to Sequencing’s website the results of a DNA test taken or stored elsewhere—for example, from 23andMe or Ancestry.com. Colby Dep., ECF 53-1 at 31:15–37:1. Either option results in the creation of a “DNA data file” containing “raw human DNA data” that can be used to assess genotype and to analyze different aspects of the user’s genetic code. The user can then purchase from Sequencing’s “marketplace” reports based on these analyses that assess the user’s heart health, likely reactions to medications, or risks of developing inherited diseases, for example, or that provide personalized recommendations on diet or general health improvements, based on the user’s DNA. See Mot., ECF 53 at 5 (reproducing screenshot of Sequencing’s website showing

available reports). Most of the reports available on the marketplace are provided by third-party developers. Colby Dep., ECF 53-1 at 44:14–45:5 (estimating that 80% of the marketplace applications are developed by third parties). These developers access the DNA data they need to perform their analyses via an “application program interface” (or “App Market API”) that functions as a data pipeline between Sequencing and the third-party tester. See id. at 45:19–47:4; 48:3– 49:16. When a Sequencing customer purchases a report by clicking the “buy” link on Sequencing’s website, see ECF 53 at 5 (depicting page to purchase the “Basic Wellness” report run by Silverberry Genomix),

the customer’s genetic information is transmitted, along with other personal information, to the third-party application via the App Market API so that the requested analysis can be performed. Colby Dep. ECF 53-1 at 52:7-7. In some instances, a user may be directed to the third-party’s website to obtain the results of a DNA analysis, but this occurs, if at all, only after the user has purchased a report and his or her genetic information has been shared. See id. at 55:6-18. In his complaint, plaintiff alleges that he created an account with Sequencing in early 2020, then uploaded his genetic information to Sequencing’s website and purchased several genetic reports from Sequencing. Compl., ECF 1-1 at ¶¶ 24-25. Plaintiff later learned that his sensitive genetic and other identifying information were

sent to third party developers, including Silverberry Genomix. See id. at ¶ 25.2 Plaintiff claims that Sequencing did not inform him that his genetic information would be shared and that he never consented to the disclosure of that information to anyone. Id. at ¶¶ 27-28. According to plaintiff, Sequencing has provided only one screenshot containing language purporting to warn users that their data will be sent to third-party testers outside of Sequencing.com. Mot., ECF 53 at 6 (depicting screenshot). The putative warning is found in the “Instructions” tab of one analysis provided by Silverberry Genomix. Id.

2 The complaint itself does not identify the third-party developers to which plaintiff’s genetic information was disclosed, but Exhibit 2B to the Declaration of Michael Ovca appears to show that plaintiff ordered a “Basic Wellness” report from Silverberry Genomix, ECF 53- 2 at 64. II.

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Melvin v. Big Data Arts LLC, Counsel Stack Legal Research, https://law.counselstack.com/opinion/melvin-v-big-data-arts-llc-ilnd-2023.