In re Child of Barni A.

2024 ME 16
Supreme Judicial Court of Maine·Decided January 31, 2024·No. And-23-100·Published·Cited by 1 cases

Opinion

MAINE SUPREME JUDICIAL COURT Reporter of Decisions Decision: 2024 ME 16 Docket: And-23-100 Argued: September 13, 2023 Decided: January 31, 2024

Panel: STANFILL, C.J., and MEAD, JABAR, HORTON, CONNORS, LAWRENCE, and DOUGLAS, JJ.

IN RE CHILD OF BARNI A.

JABAR, J.

[¶1] Barni A. appeals from an order of the District Court (Lewiston, S. Driscoll, J.) terminating her parental rights to her older child. She contends that the State of Maine’s failure to provide her child with 24/7 private nursing care that he is legally entitled to receive under Maine’s Medicaid Program, MaineCare, resulted in the trial court erroneously finding that she is unfit because she could not address her child’s complicated medical needs.1

[¶2] Because the trial court’s findings do not address important issues that must be answered before we can determine whether the record supports a finding by clear and convincing evidence that the mother is unfit, we vacate the judgment and remand the matter to the trial court.

1Briefs of amici curiae were submitted by Disability Rights Maine, the American Civil Liberties Union, and the American Civil Liberties Union of Maine; the Maine Parental Rights Attorneys Association; and the Civil Rights Corps.

I. BACKGROUND

A. Procedural History

[¶3] On July 16, 2019, the Department of Health and Human Services filed a petition for a child protection order and a request for a preliminary child protection order as to the child at issue here and the child’s younger brother. The District Court (Oram, C.J.) granted an order of preliminary child protection the same day. The petition involved both parents, but the father of the children died unexpectedly only days later. On July 31, 2019, the court (Martin, J.) held a summary preliminary hearing at which the mother appeared and waived her right to a hearing.

[¶4] Jeopardy was found against the mother as to both children on October 9, 2019, due to the threat of serious physical harm and deprivation of adequate care and shelter. The court (Dow, J.) found that the mother had failed to ensure that she consistently met the children’s medical needs, had not been able to parent the children in a consistent and predictable manner, and did not have safe and appropriate housing. The court ordered the mother to, inter alia, engage in a court ordered diagnostic evaluation (CODE), engage in a mental health assessment, consistently attend the children’s medical appointments,

maintain stable housing, and participate actively and consistently in mental health services.

[¶5] Following the jeopardy order, the court held regular judicial review hearings. On June 22, 2021, the court (S. Driscoll, J.) entered a judicial review and permanency planning order finding that the mother had engaged in the mental health treatment required by the jeopardy order and had made progress in her treatment. The court also found that the mother had demonstrated, over the course of a trial home placement that had begun in March 2021, an ability to meet the younger brother’s needs. Based on those findings, the Department moved to dismiss the younger brother from the child protection proceeding, and on September 28, 2021, the court granted the motion. The mother has retained custody of the younger brother since that time.

[¶6] A week after the younger brother was dismissed, the Department filed a petition to terminate the mother’s parental rights as to the older child. The court held a three-day hearing on the petition that concluded on February 1, 2023. On March 1, 2023, the court entered its judgment terminating the mother’s parental rights to the child. The court found that the mother is unfit because (1) she is unable to protect the child from jeopardy and

these circumstances are unlikely to change within a time reasonably calculated to meet the child’s needs and (2) she is unable to take responsibility for the child within a time reasonably calculated to meet the child’s needs. See 22 M.R.S. § 4055(1)(B)(2)(b)(i)-(ii) (2023).2 The court further found that terminating the mother’s parental rights was in the best interest of the child. See id. § 4055(1)(B)(2)(a). The mother timely appealed. See M.R. App. P. 2B(c). B. Facts

[¶7] The mother is the biological mother of both children. The older child was born premature and with a genetic abnormality that causes a range of medical challenges. Tumors on his brain cause seizures and affect his executive functioning, vision, and visual processing. The tumors will likely grow and change over time and, if they grow aggressively, could become malignant or impact brain function. The child is predisposed to neurological, cognitive, kidney, feeding, skin, and breathing issues, as well as learning and intellectual disabilities. He is unable to chew or swallow due to impaired neurological functioning. His food must be mixed and administered in measured doses through a gastronomy tube (g-tube) into his stomach, after

Under 22 M.R.S. § 4055(1)(B)(2)(b), a court may find that a parent is unfit when the parent is 2

either unable or unwilling to eliminate jeopardy or to take responsibility for the child. Here, the court expressly found that the mother is unfit based on her lack of ability and not on her lack of will.

which he must be vented, a process that manipulates his stomach to push up air to minimize painful abdominal distension and vomiting. The child receives numerous medications through both the g-tube and, at times, a nebulizer. He receives speech, occupational, and physical therapy to assist with sitting, standing, and muscle development.

[¶8] To manage his condition, the child has a cohort of care providers, including a neurologist; a primary care physician; a nutritionist; a nephrologist; a pulmonologist; a urologist; an oncologist; an ear, nose, and throat specialist; a gastroenterologist; an eye specialist; an occupational therapist; a physical therapist; a speech therapist; a teacher for the visually impaired; and a developmental pediatrician. The child has significant long-term medical needs, and it is not known whether his condition will improve or worsen over time.

[¶9] Although his condition is not acutely life threatening, the child must be monitored constantly and vigilantly for behavioral cues due to his inability to communicate verbally, lest otherwise-treatable issues be missed. He must be surveilled for subtle seizure activity, visual disturbances, twitching, urination and defecation, changes in breathing, and changes to his skin—all symptoms that could necessitate medical attention.

[¶10] According to his many caregivers, the child qualifies for 24/7 private nursing care under Maine’s Medicaid program, MaineCare. See 22 M.R.S. §§ 3172-3196 (2023); 10-144 C.M.R. ch. 101, ch. II §§ 94 (effective May 1, 2010); 10-144 C.M.R. ch. 101, ch. II § 96 (effective Feb. 11, 2019); 42 U.S.C.A. §§ 1396 to 1396w-7 (Westlaw through Pub. L. No. 118-30). He receives skilled nursing care in his resource home only on weekdays and never overnight. He has never received the 24/7 private nursing care that he legally qualifies for, either in the resource home or in the mother’s home.

[¶11] The mother has made great progress since the commencement of this child protection proceeding and has alleviated the jeopardy caused by her housing and mental health issues to such an extent that she successfully reunified with the child’s younger brother.

[¶12] Under the care of his resource family, the child has progressed.

The resource mother has provided him extraordinary care. She is extremely knowledgeable about his condition, capably coordinates his care and providers, and can provide emergency response including transportation. The resource family can also care for and attend to the child at all hours. The child has been in this placement for most of his life, and he has bonded with his resource family.

II. DISCUSSION

A. Legal Standard

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