Malkentzos v. DeBuono

923 F. Supp. 505, 1996 U.S. Dist. LEXIS 4866, 1996 WL 209934
CourtDistrict Court, S.D. New York
DecidedApril 15, 1996
Docket95 Civ. 5569(CBM), 96 Civ. 172
StatusPublished
Cited by3 cases

This text of 923 F. Supp. 505 (Malkentzos v. DeBuono) is published on Counsel Stack Legal Research, covering District Court, S.D. New York primary law. Counsel Stack provides free access to over 12 million legal documents including statutes, case law, regulations, and constitutions.

Bluebook
Malkentzos v. DeBuono, 923 F. Supp. 505, 1996 U.S. Dist. LEXIS 4866, 1996 WL 209934 (S.D.N.Y. 1996).

Opinion

OPINION

MOTLEY, District Judge.

Plaintiff in Malkentzos v. DeBuono, 95 Civ. 5569, Nicholas Malkentzos, proceeds individually in this action and on behalf of his autistic three-year old son, “MM,” against defendants Barbara A. DeBuono, the Commissioner of the New York State Department of Health, the New York State Department of Health, and the New York City Department of Mental Health, Mental Retardation and Alcoholism Services, for violations of the Individuals with Disabilities Education Act, 20 U.S.C. sec. 1471, et seq., (“IDEA”). 1 Plaintiff now moves for a preliminary injunction compelling defendants to provide MM with 40 hours per week of applied behavioral analysis (“ABA”) services or, alternatively, compelling defendants to reimburse plaintiff for providing these services and, in addition, reimbursing plaintiff for his out-of-pocket expenses incurred in providing these services to date. For the reasons set forth below, plaintiffs motion is granted in its entirety.

I. FINDINGS OF FACT

A. New York’s Implementation Of IDEA

To implement IDEA in New York, the New York State Department of Health was designated as the so-called lead agency to provide education to disabled children from 0-3 years old. 20 U.S.C. sec. 1476; N.Y.Pub. Health Law sec. 2541.12 (McKinney’s 1993). The New York State Department of Education is the lead agency for disabled children from 3-5 years old. N.Y.Educ.Law sec. 4403 (McKinney’s 1995). The New York City Department of Mental Health, Mental Retardation and Alcoholism Services is charged with implementing the duties of the lead agencies within New York City. 2 H. 42-45. 3 Educational services provided under IDEA to disabled children ages 0-3 are called early intervention services and are provided pursuant to an Early Intervention Plan (“EIP”). 4 These plans are determined *509 individually, according to each disabled child's need. H. 54-55. According to New York State Department of Health regulations, providers of early intervention services must be certified by New York State. There are about 7,000 to 8,000 children receiving early intervention services in New York City. H. 59. New York State has no guidelines describing what early intervention services are appropriate for disabled children; however, due to the confusion this had created, the Department of Health is currently considering adopting some. H. 55-56.

B. Autism

Autism is a neurological disorder that prevents the afflicted individual from processing thought, and usually manifests in self-directed, self-stimulatory behaviors such as avoidance of human contact. Tr. 74-82. 5 It is also a relatively rare disability, affecting approximately “a handful per 100,000 [disabled] children.” H. 59. Autistic individuals are unlike other developmentally disabled individuals in that they lack the skills to begin rudimentary forms of learning. H. 23-24, 94-95. However, with intensive one-on-one early intervention, autistic children are edu-eable. Tr. 71. It is therefore essential that autistic children receive appropriate education as soon as possible, ideally, upon diagnosis as infants. 6 Tr. 73.

There are several educational modalities for autistic children, but ABA therapy is the only one that enjoys any quantifiable success. 7 Tr. 73; H. 15-16, 83; Affidavit of Mary Ellen Herzog, dated November 19, 1995 (“Herzog Aff.”) at 3. In recognition of the autistic child’s inability to learn as others do, ABA breaks down activities into discrete individual tasks, and rewards accomplishment. Eventually, the child .learns to integrate information and associate instruction with a given activity. Tr. 70-71, 75-80, 93, 96-97, 100-101. ABA is not administered indefinitely; usually after two or three years the child acquires learning skills and can proceed to more traditional education. H. 14-16. Studies have shown that 47% of autistic children who receive 40 hours per week of this therapy no longer need any special education at all by the time they are of school age. No other form of education enjoys an equivalent record with autistic children. H. 15-16,83. In fact, ABA is the only program for autistic children with any demonstrated success rate at all. H. 16, 23-25; Herzog Aff. 3.

New York City currently has no early intervention program specifically designed to help autistic children. Rather, the only services available to them are those created for otherwise developmentally disabled children. H. 59-61. Clearly, such an arrangement is expedient for the City. However, serious questions exist about whether any benefit whatsoever is derived from placing autistic children in the sort of structured-play environment routinely used with disabled children. 8 H. 24. Such placement ignores the special difficulties of autistic infants and chil *510 dren and can harm their development. H. 23-24; Tr. 58-59.

New York State, on the other hand, does offer some ABA programs to autistic children. The Stepping Stones School in West-chester County, run by the Union Child Daycare Center, provides in-home ABA services on a first-come, first-served basis to autistic children ages 0 to 5. This program is certified by the state, i.e. by defendants, and is fully funded by IDEA H. 14. At least two other facilities in Westchester also provide ABA to autistic infants pursuant to a contract with the State: Baby’s Prep and Home Program, Inc. H. 73-80. These programs (together, the ‘Westchester programs”) provide up to 40 hours per week of in-home ABA services to autistic children, using both state-certified and uncertified trained personnel. H. 17. A child’s acceptance into these programs depends on the availability of spots — not on the child’s age. H. 27. New York State and New York City pay certified providers of both ABA and other early intervention services about $50 per hour. H. 22.

C. Infant MM

In the fall of 1994, when MM was eighteen months old, he exhibited unusual behavior. Tr. 21-22. On the recommendation of his pediatrician, plaintiff requested EIP services from New York City’s regional director in Staten Island, Judith Davison. 9 Id. Ms. Davison provided plaintiff with a list of approved EIP service providers. MM was then evaluated at Children At Play (“CAP”), a structured-play special education facility. Tr. 22-23. MM was found to be experiencing “generalized developmental delay” and was thus eligible for EIP services. Stip. 7-8. 10 MM’s evaluators did not realize that he is autistic. Based upon their inaccurate evaluation of his disability, MM was offered an Individualized Family Service Plan (“IFSP”) of 5¡é hours a week of EIP services at CAP’s facilities. Stip. 9-11.

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Bluebook (online)
923 F. Supp. 505, 1996 U.S. Dist. LEXIS 4866, 1996 WL 209934, Counsel Stack Legal Research, https://law.counselstack.com/opinion/malkentzos-v-debuono-nysd-1996.