In Re Dependency Of G.l., 11/28/00, Dshs, Resp v. Perry Lee And Crista Johnson, Apps

CourtCourt of Appeals of Washington
DecidedSeptember 11, 2017
Docket74065-2
StatusPublished

This text of In Re Dependency Of G.l., 11/28/00, Dshs, Resp v. Perry Lee And Crista Johnson, Apps (In Re Dependency Of G.l., 11/28/00, Dshs, Resp v. Perry Lee And Crista Johnson, Apps) is published on Counsel Stack Legal Research, covering Court of Appeals of Washington primary law. Counsel Stack provides free access to over 12 million legal documents including statutes, case law, regulations, and constitutions.

Bluebook
In Re Dependency Of G.l., 11/28/00, Dshs, Resp v. Perry Lee And Crista Johnson, Apps, (Wash. Ct. App. 2017).

Opinion

,001.1R ,s7Art- ppEA 1 WAsHIN TO 2017SEP 41110: 19

IN THE COURT OF APPEALS OF THE STATE OF WASHINGTON

In the Matter of the Dependency of: DIVISION ONE GRIFFIN LEE DOB: 11/28/2000 No. 74065-2-1 (consol. with No. 74968-4-1 and PERRY LEE and CRISTA JOHNSON, No. 74969-2-1)

Appellants, PUBLISHED OPINION V.

DEPARTMENT OF SOCIAL AND HEALTH SERVICES,

Respondent. FILED: September 11,2017

DWYER, J. — This case contains aspects of both tragedy and travesty. At

the center of it all is a profoundly disabled young boy, now aged to early

adolescence. Cared for by his parents in the family home for over a dozen

years, without government financial assistance, he eventually appears at a

hospital near death from starvation. The chaotic aftermath of his appearance

culminates in a dependency trial in which the law is misapplied and

unsupportable findings and determinations are made. The enmity on all sides is

palpable. Whether this enmity can or will lessen is beyond our control. But

ensuring that the law be applied equally and fairly is not. Accordingly, we

reverse the judgment and challenged orders of the trial court and remand this

action for new proceedings consistent with this opinion. No. 74065-2-1/2

Griffinl was born to Crista Johnson and Perry Lee on November 28, 2000.

Griffin has a fraternal twin, one older brother, and one younger brother. Griffin's

brothers are healthy.

Ms. Johnson and Mr. Lee live together with their children in Seattle. Ms.

Johnson is a program manager who works between 40 and 70 hours each week.

Mr. Lee was employed as a product manager but left his career to be a stay at

home father from 2000 through 2013. Mr. Lee has been an officer of the parent

teacher association, volunteered with the special education program, and has

been involved with the Seattle Central Little League, Capitol Hill Soccer Club,

and the Mitochondrial Guild—a group formed to raise money for mitochondrial

research. Mr. Lee is currently employed as a fiscal specialist at Washington

Middle School.

Medical History

Griffin was born with numerous medical conditions, including epilepsy,

mitochondrial disorder, cortical visual impairment, developmental delays, chronic

vomiting, and kidney stones. Griffin is functionally blind, nonverbal,

nonambulatory, and exhibits self-injurious behavior. Griffin also has low bone

mineralization and minimal density, causing his bones to break easily.

Dr. Russell Saneto, Griffin's neurologist, placed Griffin on a ketogenic diet

when he was an infant. The ketogenic diet was intended to help manage Griffin's

I Recognizing that Griffin has had many challenges in his young life, we choose to honor his fortitude, autonomy, and individuality by referring to him by the use of his full name, rather than depersonalizing him by the use of his initials.

-2- No. 74065-2-1/3

seizures. Ketogenic diets are high in fats but low in carbohydrates and proteins.

Griffin's diet required close monitoring and frequent supplementation with

vitamins and minerals to prevent deficiencies. Griffin was seizure-free from 2004

until late 2013 while on the ketogenic diet.

Caring for Griffin proved both challenging and time consuming. Each day,

Griffin's parents would bathe and dress him, brush his teeth, bottle feed him,

prepare his meals for the day, and change his diapers. Griffin attended school

most days and often participated in physical therapy, occupational therapy, and

vision therapy. Because Griffin's medical conditions are so complex, his parents

sought help from medical clinics around the country. Griffin's parents drove him

to appointments at clinics around Seattle, Detroit, St. Louis, and Vancouver,

Canada. Ms. Johnson testified that she was not able to find other parents with a

similar family and a child that required as much care as Griffin.

Griffin enjoys playing with his brothers while at home. Griffin recognizes

his brothers and responds to them differently than he does to strangers. Griffin

and his brothers vacationed together using the family car, which his parents

outfitted to accommodate a refrigerator used to store Griffin's formula. Despite

their best efforts, Griffin's parents often worried that their nondisabled children

were not getting enough attention. Griffin's brothers helped raise him but—as

children themselves—they were never "in charge" of Griffin.

Griffin has been hospitalized numerous times throughout his life, often

because of chronic vomiting and dehydration. Griffin was hospitalized at least

seven times between 2007 and 2013. When hospitalized, Griffin was typically

3 No. 74065-2-1/4

given intravenous fluid therapy as well as nutrition through a nasal feeding tube.

Although Griffin's parents always consented to the temporary use of the nasal

feeding tube, the subject was very contentious. Griffin's parents refused to take

Griffin home with a nasal feeding tube inserted because they were concerned

that Griffin would tear out the tube.

Griffin was chronically malnourished between the ages of 6 and 13.

Between 2007 and 2014, Griffin's weight fluctuated between 11.4 kgs and 15

kgs. Hospitalization resulted in slight weight gain, although Griffin's weight would

drop after being discharged. Because of Griffin's chronic malnourishment, the

subject of a permanent feeding tube (g-tube) was discussed with his parents on

multiple occasions. The issue of g-tube use is among the most contentious

subjects in this wrenching dispute.

Griffin's parents consistently opposed the surgical insertion of a g-tube as

a solution for Griffin's malnourishment. His parents believed that Griffin enjoyed

the process of bottle feeding and they were concerned that Griffin's self-injurious

behavior would result in him pulling out any permanent tubes that were inserted.

Griffin's parents were not always able to effectively convey their concerns to the

medical providers and, as a result, the medical providers were not able to

satisfactorily alleviate the parents' concerns.2

Medical professionals at Seattle Children's Hospital(SCH), where Griffin

received most of his treatment, discussed the g-tube with Griffin's parents on

2 For example, it is not clear whether Griffin's parents understood that children who use a g-tube can continue to orally feed. -4- No. 74065-2-1/5

numerous occasions. Dr. Saneto also discussed the g-tube with Griffin's parents

on at least two occasions and offered recommendations concerning methods of

preventing Griffin from removing the g-tube. Dr. Saneto believed that the g-tube

would alleviate Griffin's vomiting. Griffin's gastrointestinal clinic doctor

recommended a g-tube in 2007. Griffin's ketogenic dietician, Aaron Owens, also

recommended a g-tube in 2007. Griffin's parents refused.

In 2008, Dr. Saneto referred Griffin to the Medically Complex Child (MCC)

Service at SCH. Christa Kleiner, an MCC pediatric nurse practitioner, worked

with Griffin during that time. Kleiner informed Griffin's parents that the MCC team

"believed that [Griffin] needed to be fed through a tube rather than through the

bottle and that would help him to become better nourished and less vomiting and

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