Illinois League of Advocates for the Developmentally Disabled v. Illinois Department of Human Services

803 F.3d 872, 2015 U.S. App. LEXIS 17905, 2015 WL 6077873
CourtCourt of Appeals for the Seventh Circuit
DecidedOctober 15, 2015
Docket14-2850
StatusPublished
Cited by1 cases

This text of 803 F.3d 872 (Illinois League of Advocates for the Developmentally Disabled v. Illinois Department of Human Services) is published on Counsel Stack Legal Research, covering Court of Appeals for the Seventh Circuit primary law. Counsel Stack provides free access to over 12 million legal documents including statutes, case law, regulations, and constitutions.

Bluebook
Illinois League of Advocates for the Developmentally Disabled v. Illinois Department of Human Services, 803 F.3d 872, 2015 U.S. App. LEXIS 17905, 2015 WL 6077873 (7th Cir. 2015).

Opinion

POSNER, Circuit Judge.

This lawsuit charges violations of 42 U.S.C. § 12132, a provision of Title II of the Americans with Disabilities Act which states that “no qualified individual with a disability shall, by reason of such disability, ... be subjected to discrimination by any [public] entity,” and of Section 504 of the Rehabilitation Act, 29 U.S.C. § 794, which has identical application to this case. See Jaros v. Illinois Dept. of Corrections, 684 F.3d 667, 671-72 (7th Cir.2012).

The suit was filed two years ago on behalf of the residents of Warren G. Mur-ray Developmental Center, an SODC (state-operated developmental center). Located in Centraba, a small city in south-central Illinois, the Murray Center is one of seven SODCs in the state. Its residents (approximately 200 in number) are severely disabled, some having the mentality of an infant or toddler. Many not only are developmentally disabled but also have serious behavioral problems (often aggressive, or self-destructive as in the case of pica disorder — attempting to eat inedible objects).

The state’s seven SODCs have in the aggregate about 1800 residents. A much larger number of persons (roughly 10,000) with severe developmental disabilities live in community-based (also called community-integrated) facilities, which are houses *874 or apartments in residential settings that can accommodate between one and eight residents. The Division of Developmental Disabilities in the Illinois Department of Human Services provides services (such as housing and medical care) to approximately 25,000 developmentally disabled persons. Another 23,000 or so are on a waiting list to receive services, of whom 6000 are considered to be in emergency situations yet do not receive even essential services from the State of Illinois.

Since 2012 Illinois has been trying to shift the residents of the SODCs to community-based facilities, in accordance with a national trend — and a dramatic one, which has left Illinois a laggard outlier, with a higher number of SODC residents than any states except New Jersey and Texas. In 2013 Illinois had the second lowest percentage of developmentally disabled persons living in apartments that house six or fewer persons (Mississippi had the lowest percentage), while 13 states were no longer funding state-operated institutions designed to house 16 or more persons. David Braddock et al., The State of the States in Intellectual and Developmental Disabilities: Emerging from the Great Recession 21, 27, 31 (10th ed.2015).

This trend that Illinois seeks to join reflects the financial distress of many states (of which Illinois may be the most distressed) — community-based facilities are cheaper than SODCs — but also a belief, supported both by. evidence and by academic studies, that even persons who are severely disabled mentally or behaviorally or both do better in community-based facilities than in SODCs because they feel less isolated. The district judge in this case noted for example that “community programs are considered the best practice standard by the majority of professionals in the field. Community programs have been developing for at least 50 years and are not a fad” (citations omitted). The judge cited testimony that overall “people with intellectual disabilities do better in community programs.” For illustrative academic studies that support these conclusions see Charlie Latón et al., “Behavioral Outcomes of Deinstitutionalization for People with Intellectual and/or Developmental Disabilities: Third Decennial Review of U.S. Studies, 1977-2010,” 21(2) Policy Research Brief 1 (2011); Roger J. Stancliffe et al., “Satisfaction and Sense of Well Being Among Medicaid ICF/MR and HCBS Recipients in Six States,” 47 J. Intellectual & Developmental Disabilities 63 (2009); Marguerite Brown et al., Eight Years Later: The Lives of People Who Moved from Institutions to Communities in California (2001); Valerie J. Bradley et al., Results of the Survey of Current and Former Belchertoum Residents and Their Families: The Belchertoum Follow-Project (1992); Sheryl A. Larson & K. Charlie Latón, “Deinstitutionalization of Persons with Mental Retardation: Behavior Outcomes,” 14 J. Association for Persons with Severe Handicaps 324 (1989); James W. Conroy & Valerie J. Bradley, The Penn-hurst Longitudinal Study: A Report of Five Years of Research and Analysis 48-65 (1985); see also U.S. Senate Comm. on Health, Education, Labor and Pensions, Separate and Unequal: States Fail to Fulfill the Community Living Promises of the Americans with Disabilities Act (2013); National Council on Disability, Deinstitutionalization: Unfinished Business (2012).

One reason the residents of community-based facilities do better, at least on average, is less crowding. Fewer than 20 percent of the Murray Center’s residents have their own room, and some rooms house as many as four residents. A resident of a community-based facility is more likely to have his or her own room. Residents of community-based facilities also have readier access to stores, restaurants, movie the *875 aters, parks, etc. than do residents of SODCs. They may be too disabled to visit any of these places by themselves, but they benefit emotionally from being able to go out into the community — expand their horizons, as it were — albeit under close supervision by nurses or other medical staff, rather than being isolated in a large medical center. To be “institutionalized,” whether in a prison, a madhouse, or a “state-operated developmental center,” is to be frozen out of society — a situation that even a severely developmentally disabled person can experience as deprivation. See Olmstead v. L.C. ex rel. Zimring, 527 U.S. 581, 600-01, 119 S.Ct. 2176, 144 L.Ed.2d 540 (1999).

Not that community-based facilities are a panacea. The plaintiffs presented evidence that some community-based facilities have problems of short staffing and staff mistakes. But the record contains evidence of such problems at Murray and other SODCs, as well.

Early in 2012 Illinois launched a program to reduce the number of residents of SODCs by roughly a third. Two of the eight SODCs would be closed — and one of them was to be Murray. Scheduled to be closed in 2013, it remains open only because of this litigation. The other one scheduled to be closed, Jacksonville Developmental Center, has closed.

What will happen to the Murray residents when, as is bound to happen sooner or later, Murray is closed? Most will be placed in community-based facilities; those too disabled or otherwise unfit to reside in such facilities will be transferred to one of the remaining SODCs. Each current Murray resident is to be “assessed” for his or her suitability for community-based versus institutional residence. One goal of this lawsuit is to stop the assessment process.

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803 F.3d 872, 2015 U.S. App. LEXIS 17905, 2015 WL 6077873, Counsel Stack Legal Research, https://law.counselstack.com/opinion/illinois-league-of-advocates-for-the-developmentally-disabled-v-illinois-ca7-2015.