Detsel ex rel. Detsel v. Sullivan

895 F.2d 58
CourtCourt of Appeals for the Second Circuit
DecidedFebruary 1, 1990
DocketNo. 164, Docket 88-6227
StatusPublished
Cited by1 cases

This text of 895 F.2d 58 (Detsel ex rel. Detsel v. Sullivan) is published on Counsel Stack Legal Research, covering Court of Appeals for the Second Circuit primary law. Counsel Stack provides free access to over 12 million legal documents including statutes, case law, regulations, and constitutions.

Bluebook
Detsel ex rel. Detsel v. Sullivan, 895 F.2d 58 (2d Cir. 1990).

Opinion

GEORGE C. PRATT, Circuit Judge:

This appeal presents a novel issue under the Medicaid program. We must decide whether a handicapped child who receives Medicaid-covered nursing services 24 hours a day in her home can reasonably be denied those services during the time she attends public school. According to the Secretary of Health and Human Services, denial is compelled by 42 C.F.R. § 440.80, the Medicaid regulation that defines “private duty nursing services”. The United States District Court for the Northern District of New York, Thomas J. McAvoy, Judge, agreed with the secretary and. dismissed the complaint of Melissa Detsel, a severely handicapped child who, suing by her mother, had challenged this interpretation as arbitrary and capricious. Although we give administrative agencies considerable deference in interpreting their own regulations, we believe that the secretary has failed to advance any reasonable basis for his decision here. Accordingly, we reverse the judgment of the district court, and remand for entry of judgment in favor of Melissa Detsel.

BACKGROUND

A. Melissa Detsel.

Melissa Detsel is an eleven-year-old girl who suffers from multiple physical impair[60]*60ments involving her heart, lungs, digestive system, back, and feet. Melissa was born with an incomplete diaphragm that allowed her abdominal organs to move upward, hindering the development of her lungs. As a result, Melissa’s lungs cannot expand and contract sufficiently on their own, and she is unable to breathe without the assistance of a mechanical ventilator. When Melissa was very young, gastrointestinal abnormalities required doctors to perform a “jeju-nostomy”, or gastronomy. Later attempts to correct Melissa’s digestive problems were unsuccessful, and she now receives all her food and medication through a “J-tube”. Melissa also suffers from several heart defects and orthopedic problems, including congestive heart failure, scoliosis, and club feet. Because of the severity of her disabilities, Melissa requires the services of a trained nurse 24 hours a day.

Despite her physical handicaps and the constant presence of nurses and life-sustaining equipment, Melissa has been able to attend public school since kindergarten. Her educational plan includes traditional academic subjects as well as various special programs such as speech and physical therapy. In an affidavit filed with the district court, Robert Brannigan, a school administrator, reported:

Melissa has benefitted greatly from her school programs. She has advanced academically and socially; her reading is at the third grade level [as of February 1988]; her speech is greatly improved; and the activity level of her classes has strengthened her physically. * * * Presently, Melissa is having her best year yet. She really enjoys the school experience and the opportunity to interact with and learn from her classmates. * * * Melissa’s presence in school also has carryover benefits to her classmates. Her determination and participation in classroom activities provides a very positive example for any under-achievers in her classes; her teachers report that Melissa is “magic” to have in the classroom. * * * Overall, Melissa is quite an extraordinary child. Although her handicaps are extremely severe, she has great aspirations and determination to succeed. She is competitive and independent and she thrives on the learning and other experiences school provides.

Although Melissa’s school district can fulfill its educational obligations by providing at least one hour of home instruction per day, 18 N.Y.C.R.R. § 200.6(g), Dr. Gregory Liptak, Melissa’s treating physician, insists that such limited home tutoring would be “medically devastating” for Melissa. Dr. Liptak notes that the physical involvement and general activity level of Melissa’s school program would be impossible to duplicate at home. Maximizing Melissa’s physical development and stamina is essential, according to Dr. Liptak, “to better prepare her for the rigors of transplant surgery if her respiratory function deteriorates.” Dr. Liptak also describes the psychological and social benefits of exposing handicapped children to normal experiences, and believes that Melissa’s growth in these areas depends on her continuation in school. The secretary does not dispute Dr. Liptak’s assertions; he opposes only Medicaid’s responsibility for providing Melissa’s nursing care in settings other than her home or an institution.

B. Who Pays?

When Melissa enrolled in kindergarten in 1983, it was unclear whether the school district, Medicaid, or neither would be responsible for her nursing care during school hours. Melissa’s mother initially sought a declaration that the nursing care was a “related service” under the Education of All Handicapped Children Act (the “EHA”), 20 U.S.C. § 1401(18), and thus within the responsibility of the school district. In that action, however, a panel of this court decided that the constant and intensive nature of the care brought it within the “medical services” exclusion to the EHA, 20 U.S.C. § 1401(17), in contrast to the more routine medical procedures that courts had recently found to be “related services” under the act. Detsel v. Board of Educ., 820 F.2d 587 (2d Cir.1987) (per curiam), aff'g, 637 F.Supp. 1022 (N.D. N.Y.1986), cert. denied, 484 U.S. 981, 108 S.Ct. 495, 98 L.Ed.2d 494 (1987). Cf. Irv[61]*61ing Independent School Dist. v. Tatro, 468 U.S. 883, 104 S.Ct. 3371, 82 L.Ed.2d 664 (1984) (intermittent bladder catheterization, which child could soon perform herself, is “related service” under EHA); Department of Educ. v. Katherine D., 727 F.2d 809 (9th Cir.1983) (occasional repositioning of suction tube in child’s throat, which “even a lay person” could do, is “related service” under EHA), cert. denied, 471 U.S. 1117, 105 S.Ct. 2360, 86 L.Ed.2d 260 (1985).

The present action addresses the question of whether the cost of Melissa’s nurse in school is covered by Medicaid. Medicaid was created in 1965 when congress added Title XIX to the Social Security Act, 42 U.S.C. § 1396 et seq., and was designed as a joint state-federal program to help needy individuals pay for medical care. Once a state elects to participate in the program, it must provide a list of “mandatory services”, such as inpatient hospital care, and may also offer one or more “optional services”, including private duty nursing. The State of New York includes private duty nursing in its Medicaid plan, and Medicaid currently pays for Melissa’s nurses around the clock as long as they care for her at home or in an institution.

The secretary’s position in this case is based on his interpretation of 42 C.F.R. § 440.80 (“§ 440.80”), which reads in full as follows:

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Related

Detsel v. Sullivan
895 F.2d 58 (Second Circuit, 1990)

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