A.R. v. Secretary, Florida Agency for Health Care Administration

Court of Appeals for the Eleventh Circuit·Decided April 17, 2019·No. 17-13572·Unpublished

Opinion

[DO NOT PUBLISH]

IN THE UNITED STATES COURT OF APPEALS

FOR THE ELEVENTH CIRCUIT

No. 17-13572

D.C. Docket No. 0:12-cv-60460-WJZ

A.R., by and through her next friend, Susan Root, C.V., by and through his next friends, Michael and Johnette Wahlquist, M.D., by and through her next friend, Pamela DeCambra, C.M., by and through his next friend, Norine Mitchell, T.H., by and through her next friend, Paolo Annino, A.G., by and through his next friend Gamal Gasser,

Plaintiffs - Appellants,

B.M., by and through his next friend, Kayla Moore, et al.,

Plaintiffs,

versus

SECRETARY FLORIDA AGENCY FOR HEALTH CARE ADMINISTRATION, in her official capacity, STATE SURGEON GENERAL, in his official capacity as the State Surgeon General and Secretary of the Florida Department of Health, KRISTINA WIGGINS, in her official capacity as Deputy Secretary of the Florida Department of Health and Director of Children’s Medical Services, STATE SURGEON GENERAL JOHN ARMSTRONG, MD, DEPUTY SECRETARY DR. CELESTE PHILIP, INTERIM SECRETARY JUSTIN M. SENIOR, Agency for Health Care Administration, CASSANDRA G. PASLEY, Director of Children's Medical Services,

Defendants - Appellees,

eQHEALTH SOLUTIONS, INC., a Louisiana non-profit corporation, et al.,

Defendants.

UNITED STATES OF AMERICA, Consol Plaintiff,

versus

THE STATE OF FLORIDA, Consol Defendant.

Appeal from the United States District Court for the Southern District of Florida

(April 17, 2019)

Before JILL PRYOR, BRANCH and BOGGS, * Circuit Judges. PER CURIAM:

Six plaintiffs appeal the district court’s dismissal of a putative class action challenging Florida’s provision of medical services to Medicaid-recipient, medically fragile children. In dismissing the case in its entirety, the district court ruled that the State had unambiguously terminated its use of the challenged policy—application of the “convenience standard” in assessing whether private- duty nursing treatment was medically necessary—rendering the case moot, and that no remaining plaintiff had standing to challenge the State’s administration of its Pre-Admission Screening and Resident Review program.

After careful consideration and with the benefit of oral argument, we agree with the district court and therefore affirm.

*

The Honorable Danny J. Boggs, United States Circuit Judge for the Sixth Circuit, sitting by designation.

I. BACKGROUND

This case concerns medically fragile children—children with medical conditions so serious as to require medical apparatus or procedures to sustain their lives. 1 Each of the plaintiffs-appellants is medically fragile. For example, appellant M.D. has cerebral palsy and Strider Syndrome. Unable to swallow, she risks suffocation unless her body is positioned properly at all times. Another appellant, C.V., has Hurler’s Syndrome and cannot breathe without a tracheotomy tube—which must be cleaned every five minutes. A third appellant, C.M., has chromosome deletion syndrome, chronic respiratory failure, and severe cerebral palsy. His more than 25 medications must be administered every two hours.

M.D., C.V., C.M., and other medically fragile children sought private-duty nursing (“PDN”) services for their gravely needed, specialized, and intensive medical care. PDN services are one-on-one nursing services provided to

1 At the time this suit was initiated, Florida law defined “medically fragile” as referring to a person who is:

medically complex and whose medical condition is of such a nature that he is technologically dependent, requiring medical apparatus or procedures to sustain life, e.g., requires total parenteral nutrition (TPN), is ventilator dependant, [sic] or is dependent on a heightened level of medical supervision to sustain life, and without such services is likely to expire without warning.

Fla. Admin. Code R. 59G-1.010(165) (2012). Florida’s Administrative Code no longer contains this definition. See Fla. Admin. Code R. 59G-1.010 (2019).

individuals who require more in-depth care than a hospital or nursing facility can provide. Moore ex rel. Moore v. Reese, 637 F.3d 1220, 1234 (11th Cir. 2011).

Florida’s Medicaid program covers medically necessary PDN services provided to Medicaid-recipient children. But at the time the medically fragile plaintiffs sought these services, four Florida policies allegedly reduced coverage of PDN services for them. The first was Florida’s definition of “medically necessary,” which excluded from coverage services that were “primarily intended for the convenience of the recipient, the recipient’s caretaker, or the provider.” Fla. Admin. Code R. 59G-1.010(166) (2012); Florida Agency for Health Care Administration’s (“AHCA”) Home Health Services Coverage and Limitations Handbook (December 2011) (“Handbook”) at 2-2.2 That provision was known as the “convenience standard.” Doc. 237 at 6. 3 The State construed the convenience standard to mean that if a child’s parents were available to provide nursing services to the child, then PDN services were merely for the convenience of the caretaker and would not be covered by Medicaid. Second, Florida Medicaid covered PDN services only for children who were “unable to attend a Pediatric Prescribed Extended Care” (“PPEC”) Center: an institution in which children received out-of-

2 The Handbook is incorporated by reference into the AHCA’s rules, see Fla. Admin Code R. 59G-4.130 (2011), and therefore has the force of law.

3 All citations in the form “Doc. #” refer to numbered entries on the district court docket.

home care for up to twelve hours a day, seven days a week. Handbook at 2-19. Third, if authorized, Florida PDN services to medically fragile children were “decreased over time as parents and caregivers [were] taught skills to care for their child and [became] capable of safely providing that care or as the child’s condition improves.” Handbook at 2-23. Fourth, Florida inconsistently administered Pre- Admission Screening and Resident Review (“PASRR”) screenings—used to diagnose mental illness or intellectual disability in incoming nursing facility patients, determine whether patients require specialized services, and prescribe those necessary services, 42 U.S.C. § 1396r(b)(3)(F)—resulting in denial of medically necessary services, including PDN care.

Applying these policies, the State routinely denied PDN services to medically fragile children. Without the in-home nursing care the children needed, their families had no choice but to place them in nursing facilities, a result their families desperately sought to avoid.

Two groups of medically fragile children, through their legal guardians, sued Florida officials seeking systemic changes to the State’s administration of Medicaid services to such children. The first group, children who were institutionalized—that is, residing in Florida nursing homes—alleged that the State had inappropriately screened them for, and denied them Medicaid coverage for, services that would have allowed them to remain in their homes. The second

group, children who remained at home and received Medicaid-funded PDN services, alleged that the State’s policies, including application of the convenience standard, reduced the availability of those services and put them at risk of unnecessary institutionalization. The plaintiffs sought certification of a class of “[a]ll current and future Medicaid recipients in Florida under the age of 21, who are (1) institutionalized in nursing facilities, or (2) medically complex or fragile and at risk of institutionalization in nursing facilities.” Doc. 95 at 1.

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